I am so full of feelings today. (YIKES what a way to start a blog post. Buckle up!) As Sam gets closer and closer to getting the heck out of this hospital, I have spent a lot of time thinking about this whole experience. How it has impacted Sam, me, those who love us, what I have learned from it, and what I will take away from it.
In some ways, I hesitate to even write this because I know this process has no real end. Getting discharged from the hospital will be a huge step, but as we have painfully learned many times in the past, there is no saying what’s around the next corner, and the unforeseen physical and mental battles can be the most debilitating. Plus, we are of course excited to be discharged, but our eyes are on the prize of getting our life back in Alaska and that still seems so far away. But I digress.
I still think it would be a mistake not to reflect on the things I've learned over the past seven months of treatment, and most recent 63-day stretch in the hospital… phew!
Here are a few lessons I am going to try to keep with me:
I promised to update you on tests results from this week and then didn't. Sorry about that. The good news is the tests showed... nothing. The doctors ordered them because they feared something may be wrong or causing Sam's continued GI issues. The tests showed nothing major is wrong, but simply that Sam is taking longer to heal than most. But he IS healing. And that's all that matters. So, it was kind of no news and kind of good news too!
Besides being poked and prodded all week, Sam is feeling much better today especially - eating more, awake longer, more talkative, etc. We are still in the hospital so his team can keep an eye on him (Day 59...) but we're just so happy with the progress.
Up, down, up, down, up, down. Such is the hospital life.
Based on the vibes of the doctors, we've been excited lately about Sam's progress. He has been feeling much better, has started working a little and has been feeling much more like himself. He's still in the hospital (today is day 54 of this stretch...) but the team had been talking about trying to get him out of here by the end of the week.
Unfortunately, today the docs finally said that the fact that the bleeding in Sam's GI tract hasn't stopped is an issue. They said Sam seems to have hit a plateau that doesn't follow the normal course of healing for his condition.
Because of this, he'll have another long day of tests tomorrow to try and figure out what’s going on and assess whether his gut is continuing to heal or if we need to find new treatment options. We're bummed that he has to undergo these tests again and the stress of waiting for the results and for them to decide if they have the ability to do anything about the problems. But, we know we're playing the long game on this one and will continue to plug away at this until he is better. We appreciate the vibes and love every day.
I'll keep you guys posted once we find out more.