I haven't updated in a while since all the good news. The number one update is that Sam is HOME from the hospital. No more nighttime vitals, no more hospital food, no more cream of rice. What we thought would happen when Sam went home:We thought Sam would continue to struggle with eating and nausea for a few more days, but that he would have quick improvement given the home-cooked meals and ability to grab a snack whenever it sounds good. We thought he'd gain weight and muscle with the eating and going on walks with Birkie. We thought it would snow and we might start getting out on XC skis on the local trails in Madison. We thought we'd go into the clinic once per week for a check up, and then go on living our lives. We thought we'd work during the day, and then in the evenings, sit on the couch and hold hands and watch TV and daydream about easier times ahead. What actually happened when Sam went home:Sam continued to struggle with eating but certainly appreciated home-cooked meals and requested a few favorites. Unfortunately, he has continued losing weight and we are both looking forward to getting some meat on his bones!! Right as the eating started getting better, something else cropped up. Now, while he's still working on gaining strength and weight, he also has a minor infection that requires us to go into the clinic daily for 3-hour transfusions. It's "minor" in that it won't affect his prognosis, but it's not "minor" in the sense that it has made him really uncomfortable, exhausted, in pain, and completely unable to resume to normal life as we hoped. If it's not one thing it's another, and Sam is ready for a break!
Instead of snow, we have rain here in Madison. Still, Sam's forced himself to get out on short, soggy walks with Birkie and I each day. Since he wakes up many times each night, he's really tired so he usually naps most of the day while I work from home. Still, in the evenings, we sit on the couch and hold hands and watch TV and daydream about easier times ahead.
sally
12/6/2015 12:07:06 pm
Hoping that the situation is a temporary one! I will be in Madison Wednesday, Thursday, Friday.. Let me know if you guys are up to any company... if not know that Mitch and I send our love! xo sal
Beverly Mangerson
12/12/2015 02:56:52 am
Thinking of and praying for you both always 🙏 Comments are closed.
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