There is really no easy way to write this sooooo… Here I go:
After three awesome weeks in Alaska, Sam has found himself back in the hospital. He started feeling unwell late last week and finally by yesterday things got completely out of control. Sam had a racing resting heart rate (it capped out at 157), dropping blood pressure, rising temps, low oxygen, pain at a 9 on the 1-10 scale, vomiting, etc. etc. It was a bad day. Today though, they’re managing all that really well and trying to, “get the horse back into the barn,” as our Alaska doc just said. They think Sam’s symptoms are consistent with recurrent graph versus host disease. If you remember, GVH was what had him in the hospital for 60-some days this winter. However, he’s already back on the drugs that controlled the GVH last time around (which he had tapered off of two weeks ago). And, last time, he got worse and worse every day, and today he is already doing better than yesterday. But that could be just because he’s on alllllllll the pain/nausea meds. So, as with every other thing, we’ll just wait and see. The scariest part is that his blood counts took a dive. The docs here don’t think that suggests recurring leukemia because the GVH could explain them, but Sam’s Wisconsin doc thought they dove a little more than would be expected with GVH. So that is nerve-wracking. The plan is to see what his blood counts do over the weekend and do a biopsy on Monday if it’s necessary. Hopefully it is not. So, here we are, back in the hospital again. Luckily, we know the drill and have exceedingly thick skin at this point. And we have mountains outside our window this time. Thanks to our amazing friends who have already stepped up to bring clothes, food, entertainment and take care of Birkie. You’re the best! But really, we appreciate your help more than you know. XO
Nanci Morris Lyon
6/24/2016 07:33:28 pm
My thoughts and prayers are with you. Very grateful you are strong and grounded. I know I can't do anything from here but pray, so I will be doing that every chance I get. Hang in there girlfriend!!!
Bev Mangerson
6/24/2016 08:35:54 pm
You are in our thoughts and prayers. This just isn't fair. So hard, but I know you will continue to fight. Hang in there. Love you guys 🙏🙏🙏
Veda Rogers
6/25/2016 07:17:21 am
If ever I've been a praying person, it is now!
D Dunaway
6/25/2016 10:48:12 am
Aw heck! Well glad to see things might be getting back under control. Hope things continue to improve. Best wishes n prayers for you both.
Aimee
6/25/2016 03:46:56 pm
But Le Tour starts so soon! Sending lots of positive vibes to you both.
Talia
6/26/2016 08:42:38 am
Sending prayers and so much love your way! I am so glad you guys have milked the last three weeks and have fresh memories of the wilderness and beautiful outdoors. You guys deserve the best view of majestic mountains from your window, and hopefully soon from the great outdoors again!
Mac Minard
6/27/2016 04:59:52 am
Jenny Comments are closed.
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