Sam's leukemia is back again, putting his transplant and hopes for a cure back on hold. On top of that, today he was finally diagnosed with a resurgence of graph versus host disease after six days of round the clock vomiting and diarrhea. He was admitted to the hospital on Thursday evening for closer monitoring and to start IV nutrition to sustain his weakened body. He hasn't been able to keep more than a few bites of food down since Monday. In between incessant tests and trips to the bathroom and interruptions from doctors and nurses coming in to hang meds, he sleeps about 20 hours a day. We don't know yet how the GVH impacts the treatment options for the leukemia. Because he has two other viruses on top of the GVH, they won't let him leave his small hospital room even for a walk in the hallway.
The ~four hours a day he is awake, he's able to make jokes and talk, which is a gift. And, his "brother" Pete came to visit this weekend - also a gift. I'm so grateful for these two things and the constant, powerful love from all of you. But in regards to the rest, I'm actually speechless. For one of the first times in this whole cancer ordeal, I have no idea what to say.
DAD
2/12/2017 08:23:31 pm
Don't know quite what to say either. But know that we love you SO much. We're praying for God's Shalom / Peace over you Sam and Jenny.
Eileen McNamara
2/12/2017 08:24:16 pm
Such suffering. I am speechless but please know that I hold Sam, you, and the family in love and prayers.
Barb
2/13/2017 03:50:06 am
You two have such amazing strength and such positive outlooks I am truly humbled. I prayer for strength and healing for your family daily.
Linda Hilden
2/13/2017 04:32:14 am
Dearest Sam and Jenny. Words come hard, but prayers are flowing. I pray the Lord, who loves you more than we understand in our human thinking will surround you with His peace and comfort. Look up, He has not left or abandoned you. It's when we can't see or feel Him He is closest waiting for us to run into His arms. We love you both.
Mimi
2/13/2017 05:09:52 am
Jenny and Sam,
marilyn tucker
2/13/2017 05:37:55 am
Once again I appreciate the update on you Sam - however it seems God is not answering our prayers - I will try harder as I know everyone will too - Love to you both
Sally H. Mode
2/13/2017 05:58:16 am
sending so much love ...
Dick & Marilyn
2/13/2017 06:00:15 am
To my "Float buddy", looking forward to our next trip! 2/13/2017 06:42:28 am
Always have you in our thoughts and prayers- sending so much love Sam's way! I admire Sam's determination to keep fighting for his life as his priority. I know no one stronger or more of a warrior, but his family is as strong. Thank you for sharing these very difficult updates. Sending you our love and strength.
Lavra
2/13/2017 07:17:21 am
Love you.
Carol
2/13/2017 07:19:50 am
Hi - although I've never met you or Sam, I knew your grandparents when I spent winters in Florida. I'm sorry for this setback, and hope for improvement. Thank you for letting me share in your prayers for full health.
Renee Klotzbach
2/13/2017 09:51:14 am
Our hope: There's more information available at lightning speed that THE CURE is just around the corner for so many! Love hopes...
Dawn Allen
2/13/2017 01:49:26 pm
Praying every day!! So sorry to hear this news!! Praying for a miracle for Sam!!
Uncle Tom
2/13/2017 02:51:23 pm
I am praying for our Saviors healing powers.
Harvey kanter
2/13/2017 04:10:35 pm
Never ever believe anything but a miracle is coming. In the meantime know everyone is praying for you both. PURE DENIAL, end of story.
Janelle Bamlett
2/17/2017 07:31:00 am
Sam and Jenny, I'm so sad the news wasn't better. You all continue to be in my thoughts and prayers. Such strong, beautiful role models you are Comments are closed.
|
Archives
November 2019
Categories |