I'm so sorry to be the bearer of bad news, but we did not get the results we were all hoping for yesterday.
The chemo regimen was not successful in getting Sam into remission. Because of this and a few other complicating factors, the team of doctors at the big meeting yesterday decided he is not eligible for the bone marrow transplant as the procedure would likely "shorten his life," and due to his very aggressive form of AML, would be unlikely to work anyway. A couple of AML specialists are now investigating whether there are any clinical trial options that Sam could be eligible for, but we were told the chances of that are also unlikely. Head down and with a sigh, Dr. Masumi said without treatment, Sam has, "Weeks. Months, maybe." I have no idea what do to do or feel or say right now, but will keep you posted as we start to figure that out. In many ways, we're back to where we were in October, though now we know we have tried our hardest and have no regrets entering into the next phase of this horrible fucking disease. Today is our first full day in search of whatever is next and, just in case the worst is around the corner, a more concerted effort to re-tell and re-live the many, many happy stories and memories that made us into the couple we are today. Here are just a few of photos from the archives of some of the happiest times ever:
Tessa
3/16/2017 10:13:27 am
I have been keeping up with your story and these pictures were beautiful. Many good vibes to you both. 3/16/2017 12:07:40 pm
Sending our love and strength to both of you... Love you both!
Allie Caffery
3/16/2017 02:04:25 pm
Jenny. Your strength is incredible. Over the last 6 weeks I have thought of you often... endless hospital stays, navigating good and bad news all in one day, the list goes on... my perception has completely shifted. You are amazing ! Praying for you and Sam!
Danielle Schroder (Hittle)
3/16/2017 03:50:24 pm
Much love to you all (in the good times and the bad). I'm praying. ~Dani
Ian McConnell
3/16/2017 04:28:12 pm
Oh Jenny and Sam, shit. What terribly hard news to receive. In the coming weeks, months, years, I'll be praying for you to feel moments of peace and a life of gratitude, despite this ongoing fear and pain. Sending all my love to you.
Cori Adams
3/16/2017 05:30:45 pm
Jenny, I'm so very sorry to hear this terrible news! I'm sending my love, thoughts and strength to you and Sam. I hope you can enjoy several more moments of happiness together in this difficult time.
Maggie
3/16/2017 07:03:20 pm
You're loved and cared about by so many I can't help but believe there is a solution. I will keep Sam and the whole Weis family in my thoughts and don't give up. Never ever give up hope. Where there is a will there is a Sam Weis. Hug. Squeeeeeeze.
Nanci
3/17/2017 11:02:25 am
Many prayers and warm thoughts. If there is anything I can do I would love to. Perhaps a fishing trip or spot to get away?
Mary E. Weis
3/18/2017 01:46:15 pm
I have been following your emails since the beginning and will continue to keep you both in my prayers...my whole family joins me in praying and thinking of you...Love and Hugs, Aunt Mary
Carol McMahon (Abbey's mom)
3/19/2017 06:07:29 pm
Jenny and Sam, Comments are closed.
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